So Rachel is now one. I thank God for all that has transpired this year.
Despite the NF1, or perhaps because of it, I believe we're overall happier than before. Now, nothing can happen to us that could be really bad. Even if it's anything conventionally viewed as terrible, it's all just part of life. Love carries on. We have every good thing we could possibly need. Anything else is a bonus!
The little baby is such a happy, sweet-tempered child. She crawls, claps, laughs, waves bye-bye. Loves chewing paper and cardboard. At one time I was sad that I might never find her the cutest baby in the world, because of the distortion caused by NF1, but I found myself recently unexpectedly asking S if he didn't think so!
We got her a little cake covered with pink chocolate shavings, and decorated with plastic toys like a Spider-Man figurine, a Miffy figurine, a coconut tree, a hot-pink flower with leaves, a strawberry, a gooseberry. Haha! It was so random, and tasted really good! Sophie went strictly for the shavings while the older kids disdained them in favour of the chocolate sponge. Rachel also had some of the chocolate sponge, and then went on promptly to her bedtime routine. She even managed to say "pome-pome," when we got her to try! Our little darling. So loved. I hope not "so spoilt" too, when she gets older.
Wednesday, 19 May 2010
Friday, 9 April 2010
Enny Wenny Werr
"Baa baa black sheep
Enny wenny werr
Yes sir yes sir tree blacks for
One for the monster
One for the day
Little boy sits in the tree all day
Baa baa black sheep
Enny wenny werr
Yes sir yes sir tree blacks for."
And Sophie really thinks she is singing it properly too!
Enny wenny werr
Yes sir yes sir tree blacks for
One for the monster
One for the day
Little boy sits in the tree all day
Baa baa black sheep
Enny wenny werr
Yes sir yes sir tree blacks for."
And Sophie really thinks she is singing it properly too!
Thursday, 8 April 2010
"Can you tell me the months of the year, Sophie?"
"Jannery, Feddery, March..."
-------
"What did you eat at the party?"
"I ate cumcuber and sausage."
-------
"Go and change, Sophie."
"Oh, change into my uniform?"
"No, you're not feeling well so you're not going to school today."
"Oh, I'll stay at home and you will look after me?"
"No, I've to go to work."
"Oh, Aunty will look after me and I will look after Rachel and you will go to office?"
"Jannery, Feddery, March..."
-------
"What did you eat at the party?"
"I ate cumcuber and sausage."
-------
"Go and change, Sophie."
"Oh, change into my uniform?"
"No, you're not feeling well so you're not going to school today."
"Oh, I'll stay at home and you will look after me?"
"No, I've to go to work."
"Oh, Aunty will look after me and I will look after Rachel and you will go to office?"
Thursday, 1 April 2010
A Precarious Peace
I thought we were cool. About Rachel's condition and all. Just living life as it unfolds, going about our day to day things, appreciating the present and hopeful about the future.
I reached out to someone who also has a child with a congenital condition. We met briefly, and I received messages from her on my phone. She really wants to help. She told me about her grown-up friend with a similar condition as Rachel's, recommended another doctor, suggested I do what she did for her child to counter potential learning difficulties, such as put Rachel on a special diet, take her for spiritual healing sessions, and do a famous baby reading acceleration programme with her. This kind lady reiterated her suggestions a few times although I repeatedly tried to convey the message that we were not seeking additional help as such.
Boy was I surprised to find myself irrationally upset and in doubt after that short exchange. Perhaps this goes to the heart of every mom's fears, that she is not doing the best she can for her child. It has never occurred to me to flash any cards at Rachel. In the first place, I don't believe in those baby programmes. Other people are very welcome to go for them if they so wish. Not me.
But to have the recommendations so adamantly repeated, citing how doctors are shocked at her child's development (they were warned about mental retardation), bore down on me that I could in fact be short-changing Rachel by not doing all those things as well. It didn't help that I had very recently received news that I failed my exams, which means resitting them at the end of the year, upsetting all my other leave plans.
What better set-up for the bug that truly bit? Influenza! The last time I had it, I had just learnt that Rachel was on the way, and it raged for a week. Thankfully, this time round the fever went away after a single dose of ibuprofen. It did however leave me with hugely swollen eyes that gave great merriment to my children. Can't say there wasn't a silver lining to that cloud.
But I'm more thankful for the unexpected recovery of peace. There's nothing a few days of lying in bed won't solve, I find. There's only so much one can weep, or fear, or doubt, without growing suddenly tired of it and throwing it all off with a single resolution of the mind and heart. This being Holy Week is another "bonus" - everything united to the cross of Christ, whose yoke is easy and burden light.
The clincher was when I went back to work to find that big boss had been looking for me. Must be some work issue - he is well known to have exacting standards. No, it turned out to be nothing work related. Instead, having noted my sudden absence, he was actually worried that I might have been unduly upset by my exam results. He had even asked another partner to check that I was all right as he was going away on a business trip himself, which explained that unknown missed call number I found on my phone. I'm touched! And I'm not about to commit harakiri over a bunch of test scores, certainly - who's going to cut all the kids' nails if I'm gone??
Funny how people who come across as tough are often actually softies inside. Oh well. Time to put down deeper roots in faith and hope. Nice time, now.

I reached out to someone who also has a child with a congenital condition. We met briefly, and I received messages from her on my phone. She really wants to help. She told me about her grown-up friend with a similar condition as Rachel's, recommended another doctor, suggested I do what she did for her child to counter potential learning difficulties, such as put Rachel on a special diet, take her for spiritual healing sessions, and do a famous baby reading acceleration programme with her. This kind lady reiterated her suggestions a few times although I repeatedly tried to convey the message that we were not seeking additional help as such.
Boy was I surprised to find myself irrationally upset and in doubt after that short exchange. Perhaps this goes to the heart of every mom's fears, that she is not doing the best she can for her child. It has never occurred to me to flash any cards at Rachel. In the first place, I don't believe in those baby programmes. Other people are very welcome to go for them if they so wish. Not me.
But to have the recommendations so adamantly repeated, citing how doctors are shocked at her child's development (they were warned about mental retardation), bore down on me that I could in fact be short-changing Rachel by not doing all those things as well. It didn't help that I had very recently received news that I failed my exams, which means resitting them at the end of the year, upsetting all my other leave plans.
What better set-up for the bug that truly bit? Influenza! The last time I had it, I had just learnt that Rachel was on the way, and it raged for a week. Thankfully, this time round the fever went away after a single dose of ibuprofen. It did however leave me with hugely swollen eyes that gave great merriment to my children. Can't say there wasn't a silver lining to that cloud.
But I'm more thankful for the unexpected recovery of peace. There's nothing a few days of lying in bed won't solve, I find. There's only so much one can weep, or fear, or doubt, without growing suddenly tired of it and throwing it all off with a single resolution of the mind and heart. This being Holy Week is another "bonus" - everything united to the cross of Christ, whose yoke is easy and burden light.
The clincher was when I went back to work to find that big boss had been looking for me. Must be some work issue - he is well known to have exacting standards. No, it turned out to be nothing work related. Instead, having noted my sudden absence, he was actually worried that I might have been unduly upset by my exam results. He had even asked another partner to check that I was all right as he was going away on a business trip himself, which explained that unknown missed call number I found on my phone. I'm touched! And I'm not about to commit harakiri over a bunch of test scores, certainly - who's going to cut all the kids' nails if I'm gone??
Funny how people who come across as tough are often actually softies inside. Oh well. Time to put down deeper roots in faith and hope. Nice time, now.

Thursday, 25 March 2010
Ford S-Max
Our reason for changing cars has always been to accommodate our growing family. So it was a MkI Focus sedan until we had 3 kids, and now with the fourth, the Edix had to go. Both cars had served us wonderfully for four years each, and would still be highly recommended for families of up to five and six respectively. But with helper in tow on weekends it meant one child had to be carried or sitting on the floor, neither comfortable nor safe solutions.I had previously test-driven the S-Max (or Smacks as we like to call it) around two years ago, and immediately loved the way it drove. It reminded me of a grown-up Focus, whose steering and chassis I had missed when we switched to the Honda. Meatier, less delicate, but just as precise and responsive to inputs, it was stable and planted on straight roads, and a dream to corner. But at over $110k (then), I had to write it off as beyond my reach.
Fast forward to the beginning of February this year, and a few factors came together to prompt a decision. The Edix was nearing its fourth birthday, and while remaining utterly practical (I still cannot find another reasonably-priced, yet fairly compact car that seats six adults comfortably, along with a full Corolla-sized boot), it was, as mentioned previously, starting to strain from our family’s needs. Also, with 130,000km on the odo, bigger wear and tear costs were starting to creep in – I had already replaced a front suspension arm, and I suspected the wheel bearings were heading south as well. On top of these, COE prices were on the rise, in anticipation of the impending the quota cut, so if we were to make a change, it would have to be soon.
From there the choice became clearer. The Renault Grand Scenic, VW Touran and Citroen Grand Picasso all boast three individual seats in the middle row, but have much smaller boots than the Smack’s decent 285 litres, and there was no way in heck I’d live with barges like the Espace or Voyager on a daily basis. I’d sooner get a Vito.
Of course, a new Smacks was still pricey at a dollar under $100k (in Feb), while 2-year old examples, bought for nearly $120k, were going for around $80k. It made a lot of sense to buy second-hand, especially for a fast-depreciating, “non-luxury” conti brand like Ford. A quick check online confirmed two used S-Maxes for sale, a Trend and a Titanium. The Titanium was a few months older and had more mileage on the clock, but the dealer wasn’t asking for much more than the Trend, plus the OMV was a whopping $5k greater. Even ignoring the better trim level, it was looking like the better deal.
But what a trim! In the UK, 70% of owners spec their Smacks to Titanium, and it’s not hard to see why. 17-inch rims, auto-lights and wipers, double-moonroof, 8-inch information screen in the instrument cluster with steering-mounted controls, dual-zone climate control, cruise control, bi-xenon headlamps and cornering lights, auto-dimming rear-view mirror, two extra airbags for second row passengers, full leather seats, 8-way powered driver’s seat and powered-height adjustment for the front passenger. All this on top of the already not-impoverished Trend level.Admittedly, some of these toys are less useful than others, but they are nice to have all the same, and even better with the minimal price difference between the two cars I was looking at. I was pleasantly surprised with the effectiveness of the rain sensors, one of the features I had originally written off as gimmicky. With the start-stop rain we’ve been having recently, it was comforting to have one less thing to have to keep adjusting on the move. And not having to take my hands off the steering wheel to control the cd player is pure joy. But no such luck with my iPod, which is connected to the lovely 8-speaker system via a simple coaxial input instead of data-readable USB.
A week into ownership, I was trawling through online reviews when I discovered from a photo that my very car was used by Straits Times for their long term test! This got me a little apprehensive at first, especially when I realized that at the end of its five month stay with them, it was sent to Sepang for a right thrashing. But then again, I believe mechanical parts are meant to be used (even used hard), and a comprehensive pre-sale inspection confirmed the car was still in excellent condition. On the flip side, being a press car meant that Regent Motors took particularly good care of it, right down to banishing the few squeaks and rattles that were reported. Thus far, the only cabin noises I hear come from my sunglasses in its holder and the child seats. It is otherwise a highly-refined and relaxing cruise. So much so that my second daughter seems to fall asleep on drives of even moderate distances.
One practical downside of its girth is a bus-like turning radius, large at 11.9m, but made borderline-unacceptable by the Edix’s tiny 10.5m effort. If those numbers don’t seem to mean much, I suggest you find a two lane U-turn and discover how significant that extra 1.4m can be. I blame the necessity to fit the Focus ST’s 2.5 litre 5-cylinder motor into the engine bay for the Smacks’ lack of parking maneuverability. Sure enough, the ST shares an identically-dismal turning circle.
Rather unfortunately, we don’t get that lovely turbocharged engine in Singapore, at least not in the Smacks. And the new fast but frugal 2 litre Ecotec will not arrive until later this year, so what I have under the bonnet is the 2.3 litre unit, closely-related to the one found in the Mazda 6. For a VVT, its headline figures (161 hp, 208 Nm) are not outstanding, but matched with a silky 6-speed auto gearbox with sport mode, the power is put down to the road very well.
Driven casually, progress is smooth and shifts near-indiscernible, with engine noise barely intruding into the cabin. Give the accelerator a stab however, and the gearbox will drop one or two notches, the engine note hardening up and sounding suitably sporty from 3,500 rpm onwards. You never feel the resulting surge, in terms of pure accelerative shove. But a glance at the sweeping speedo needle and relative velocities of adjacent traffic will convince you that you are beginning to travel rather quickly indeed. This deceptively-relaxed situation is compounded by the Smacks’ exceptional body control, which feels more tied down the faster you travel.A short blast down Old Upper Thomson Road showed how its dynamic components – engine, gearbox, steering, suspension, brakes - come together so beautifully when showed a series of bends, it is truly more than a sum of its parts. Despite weighing close to 1.7 tonnes, the S-Max resists understeer and body roll in a fashion that would shame many hatchbacks with one-third less mass to carry around. The result is a real confidence in your machine, which in turn leads to better judgment and situational awareness. Ford’s engineers should be applauded for consistently instilling such crucial driving intangibles (and pleasures) into its mainstream cars.
As always though, the snag with enthusiastic driving lies in fuel consumption, and this engine is proving to be something of a drinker. The official combined figure is 9.7 l/100km (or 10.3 km/l), and while this number is certainly achievable, it takes a strong will, light foot and quick swapping into the higher gears. With average consumption staring at me from the large info display, I have learnt to avoid city driving as much as possible, and detest idling the engine for any time at all. But sometimes, just sometimes, the urge to open the taps to 5,000 rpm proves irresistible, and the bliss of the experience lasts right up to the point where I remind myself to drive like an uncle again.
So there you have it, our new old car. Hugely comfortable, hugely safe (9 airbags!) and at certain U-turns, just plain huge. It may not have a factory-fresh crispness, but at least I know its teething gremlins have been taken care of. Above all, it’s the right car for me at the right time, which is what matters most. I’m glad to be back with the Blue Oval.
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Monday, 15 March 2010
Get Well Soon, Sophie
Little Sophie has a cough and low grade fever, so she can't stay over at her cousin's place with her older brother and sister. The poor thing cried when we left her to be put to bed by our helper.
When we got back the house was already dark. But she was still coughing in her room so we went in and she immediately sat up. "Hello Mommy hello Daddy."
She felt clearly warm to the touch, so I gave her some Paracet. As she snuggled back down, she asked why she couldn't stay at Natalie's house.
"You're not feeling well, Sophie. When you're well you can stay there next time."
"Oh, when I'm well I can stay at Natalie's house?"
"Yes."
"Oh, Auntie Sue Lin will wake us up? And we can have breakfast, and drink milk?"
"Yes."
In the darkness I could just about make out her smile and wide-opened eyes as she lay there imagining staying over, although here she was, left out of all the fun, sleeping on her big brother's bed as a consolation.
She said, "I'm happy that Kor-kor and Jie-jie can stay at Natalie's house."
When we got back the house was already dark. But she was still coughing in her room so we went in and she immediately sat up. "Hello Mommy hello Daddy."
She felt clearly warm to the touch, so I gave her some Paracet. As she snuggled back down, she asked why she couldn't stay at Natalie's house.
"You're not feeling well, Sophie. When you're well you can stay there next time."
"Oh, when I'm well I can stay at Natalie's house?"
"Yes."
"Oh, Auntie Sue Lin will wake us up? And we can have breakfast, and drink milk?"
"Yes."
In the darkness I could just about make out her smile and wide-opened eyes as she lay there imagining staying over, although here she was, left out of all the fun, sleeping on her big brother's bed as a consolation.
She said, "I'm happy that Kor-kor and Jie-jie can stay at Natalie's house."
Monday, 1 February 2010
Being Thankful
Matthew was given a Catechism class assignment: write down the things he's thankful for. He wasn't quite sure how to begin, so Sean asked him, "Well, what are the things that you're thankful for?"
Matt thought a while and said, "Wii?"
Sean replied, "OK... What are some things or people that if you didn't have them anymore, you would feel very sad? Say the TV. If you didn't have the TV anymore, would you be really very sad?"
"Ermm... not really."
"OK. What about Sophie?"
"Err... not really. She's quite naughty sometimes!"
"But if she wasn't around anymore, would you feel sad?"
"Ya."
"And Sarah?"
"Yes."
"Mommy and Daddy?"
"Yes."
"Auntie?"
"Yes."
"So, what are the things or people that you are thankful for?"
Matt thought a while. Then he said, "Wii?"
Matt thought a while and said, "Wii?"
Sean replied, "OK... What are some things or people that if you didn't have them anymore, you would feel very sad? Say the TV. If you didn't have the TV anymore, would you be really very sad?"
"Ermm... not really."
"OK. What about Sophie?"
"Err... not really. She's quite naughty sometimes!"
"But if she wasn't around anymore, would you feel sad?"
"Ya."
"And Sarah?"
"Yes."
"Mommy and Daddy?"
"Yes."
"Auntie?"
"Yes."
"So, what are the things or people that you are thankful for?"
Matt thought a while. Then he said, "Wii?"
Friday, 22 January 2010
TGIF
because Thursday wasn't so good. Sarah went missing after school.
She was first discovered missing by the school bus driver who had been waiting for her in order to set off. School was alerted, I was alerted, my parents got alerted since they happened to be over at our place and school called there.
Half an hour of a lot of calling and messaging back and forth, keeping Sean updated and waiting for further updates and general high tension later, the school was able to tell me that she had been located at a childcare centre with another classmate.
This place is one kilometre and two main roads away from school! The two primary 1 girls had walked there all by themselves - that's like walking down the entire Orchard Rd from CK Tang to Centrepoint! This was the classmate's regular after-school-care place, but her parents normally took her there, and they too couldn't find her when they first went to school to take her. It was the centre who called the school to say that their ward had brought a friend along. I'm thankful they had the sense to report the appearance of a school kid who evidently was not on her usual way home.
So, both girls were brought back to school by the other girl's parents to give an explanation of what they were up to, and Sean went to school to get Sarah home since the school bus couldn't wait anymore and had left long ago.
Anyway. We didn't stop nagging until she went to bed. Even now, I still can't stop thinking about how she is once more the target of a more dominating child. Her classmate was the one who asked her to go with her, who pulled her to leave by another school gate, and even made Sarah carry her school bag for her along that one kilometre stretch! And this girl isn't even one of her usual friends. And Sarah, being the compliant, helpful child that she is, simply did as that girl told.
I don't think we'll be forgetting this in a hurry.
She was first discovered missing by the school bus driver who had been waiting for her in order to set off. School was alerted, I was alerted, my parents got alerted since they happened to be over at our place and school called there.
Half an hour of a lot of calling and messaging back and forth, keeping Sean updated and waiting for further updates and general high tension later, the school was able to tell me that she had been located at a childcare centre with another classmate.
This place is one kilometre and two main roads away from school! The two primary 1 girls had walked there all by themselves - that's like walking down the entire Orchard Rd from CK Tang to Centrepoint! This was the classmate's regular after-school-care place, but her parents normally took her there, and they too couldn't find her when they first went to school to take her. It was the centre who called the school to say that their ward had brought a friend along. I'm thankful they had the sense to report the appearance of a school kid who evidently was not on her usual way home.
So, both girls were brought back to school by the other girl's parents to give an explanation of what they were up to, and Sean went to school to get Sarah home since the school bus couldn't wait anymore and had left long ago.
Anyway. We didn't stop nagging until she went to bed. Even now, I still can't stop thinking about how she is once more the target of a more dominating child. Her classmate was the one who asked her to go with her, who pulled her to leave by another school gate, and even made Sarah carry her school bag for her along that one kilometre stretch! And this girl isn't even one of her usual friends. And Sarah, being the compliant, helpful child that she is, simply did as that girl told.
I don't think we'll be forgetting this in a hurry.
Sunday, 27 December 2009
Home Alone
That's me, sort of. Consuelo's gone to the Philippines for 3 weeks so I'm on leave covering her at home. At work I'm covering absent partners or associates on a daily basis. Sometimes it feels almost as if I'm even covering myself while the real me's living in some other world out there.
It's been one big chuck fest so far. I have what I call a "best friend" hanging from a rail in the kitchen. It's a big Duty-Free plastic bag that's been helping me lug out countless bagloads of stuff to the common rubbish chute. A sturdy, silent, generous-sized best friend. Two years' worth of accumulated Happy Meal toys, kiddy drawings, done-ded sticker albums and crazy general whatnot that have added a ton of useless floor loading to our little flat are now finito. They make a great, satisfying noise clanging down seventeen floors worth of chute space.
The 3 big kids have been and will be going to stay over at my parents' place, coming back when Sarah has a ballet lesson or two. This saves me a lot of work, and we're thankful for the help. The quiet is very restful, but we're always glad to have them with us again. It's also holiday season so Sean has a good number of days at home particularly when the kids are back, so we're all managing to stay alive and fed and clean.
Rachel stays home. She naps beautifully (and longly) in her cot and we don't want to disrupt that. It's wonderful having gotten the hang of her daily routine. She responds so cheerfully and readily when all her needs are timely met, it feels almost criminal when we have to all go out and there's any disruption. Of which there've been several, given the festive season, but she's been sweetly accommodating of all those blips in her neat little baby life. She's also grown rather sticky to me. I foresee tears when I have to go back to work. Mine, not hers.
It's been one big chuck fest so far. I have what I call a "best friend" hanging from a rail in the kitchen. It's a big Duty-Free plastic bag that's been helping me lug out countless bagloads of stuff to the common rubbish chute. A sturdy, silent, generous-sized best friend. Two years' worth of accumulated Happy Meal toys, kiddy drawings, done-ded sticker albums and crazy general whatnot that have added a ton of useless floor loading to our little flat are now finito. They make a great, satisfying noise clanging down seventeen floors worth of chute space.
The 3 big kids have been and will be going to stay over at my parents' place, coming back when Sarah has a ballet lesson or two. This saves me a lot of work, and we're thankful for the help. The quiet is very restful, but we're always glad to have them with us again. It's also holiday season so Sean has a good number of days at home particularly when the kids are back, so we're all managing to stay alive and fed and clean.
Rachel stays home. She naps beautifully (and longly) in her cot and we don't want to disrupt that. It's wonderful having gotten the hang of her daily routine. She responds so cheerfully and readily when all her needs are timely met, it feels almost criminal when we have to all go out and there's any disruption. Of which there've been several, given the festive season, but she's been sweetly accommodating of all those blips in her neat little baby life. She's also grown rather sticky to me. I foresee tears when I have to go back to work. Mine, not hers.
Wednesday, 9 December 2009
My Favourite Flower
Some mornings on my way to work, I find freshly shed blossoms under a frangipani tree along the way. I gather some of the best ones and arrange them at the base of my monitor.I once also left a cluster on my secretary's desk, thinking that she'd be pleased to find them when she got to work. Shortly after she arrived, she came in to my room, looking a little worried and, I thought, scared! I asked her if everything was alright. She asked me if I was the one who had placed the flowers on her desk. I said yes. Visibly relieved, she told me that it gave her a turn to see them because, apparently, according to custom, these are flowers of DEATH and she thought it was a sign for her! Yikes.
Anyway, this morning, among an abundance of fallen ones on the grass, I picked up a particular bloom that you see on the right. In all my life admiring the frangipani, some 30 years now, this is the first time I've come across a six-petalled one. It's an anomaly, a genetic mutation, that makes it different from all the other perfectly formed flowers. I couldn't help thinking of Rachel. I showed it to another colleague and she said it was even more beautiful than the others, the way the overlap in the petals showed up more distinctly.
I saw only its difference, she saw its own perfection. I think it's a sign for me.
Thursday, 19 November 2009
Mouth Disease
That's what I call it, since they're not getting any hand or foot blisters. Herpangina sounds so awful! The backs of their little throats are still red and ulcerated (say, "AHH!!"), and they're taking it in turn to start out with high fever that warms down to normal temperature in two or three days. Sophie first, then Sarah and Rachel, and finally Matt.
Very thankfully so far, the big ones are still perfectly able to watch too much TV, fight over a toy/game/thing/whatever, run around yelling and chasing each other (for that toy/game/thing/whatever), and generally carry on with normal life, including sleep. Baby's sleep is another story though, I'll save that for another time.
They're managing to eat soft foods like porridge and have no problems with drink. I feel quite sorry for them as the ulcers look horribly painful. Sophie sometimes cries about eating. But she cries only if we don't let her have her potato chips, which she continues to wolf down. Don't ask me how!
Very thankfully so far, the big ones are still perfectly able to watch too much TV, fight over a toy/game/thing/whatever, run around yelling and chasing each other (for that toy/game/thing/whatever), and generally carry on with normal life, including sleep. Baby's sleep is another story though, I'll save that for another time.
They're managing to eat soft foods like porridge and have no problems with drink. I feel quite sorry for them as the ulcers look horribly painful. Sophie sometimes cries about eating. But she cries only if we don't let her have her potato chips, which she continues to wolf down. Don't ask me how!
Wednesday, 11 November 2009
"My father" by Sarah S
My father's name
is Sean. he is 34 years
old. he does not have
an occupation. his favourite
food is chips. his hobby
is watching tV. I love him
because he loves me too.
is Sean. he is 34 years
old. he does not have
an occupation. his favourite
food is chips. his hobby
is watching tV. I love him
because he loves me too.
Wednesday, 4 November 2009
Magic Zzzz
Just a note that, with a lot of patience and gentle persuasion from our dear Consuelo, Rachel has actually gone from "cannot nap anywhere except in arms" to "just prone her down in the cot when drowsy, pacifier-in-mouth and hanky-in-hand". Phew.
La Dolce Vita
For a while there I didn't think I could ever be happy again. Which was a sad reflection on the state of my faith of course. But it's amazing what time (and God) can do. I can truly smile again and just enjoy every day we are blessed with, especially this unexpectedly and wonderfully relaxing and refreshing exam period. And I mean my own exams which will (unfortunately) be done by 8pm tonight.
Because I'm officially supposed to be studying, there's no pressure to "spend time with the kids!!" like when I'm on annual leave. I drift in and out of my room as I please, feeding Rachel when it's time, picking up the girls from their school bus drop-off if I feel like it (which I do), and generally having absolutely no "mommy" stress. Study for exam? Oh, ya, that. Sure, I study, and I get butterflies before the papers, but that's like a grain of sand compared to the hopper-load when it comes to general parenting, and the ten tons that fell on us when Rachel was diagnosed.
For now, very thankfully, our curly-headed little 5+month-old is developing like any other (normal) baby. She's a pro at rolling over and over (to the left, to the left), brings everything to mouth including her toes, loves standing and jumping on her sturdy little café au lait spotted legs, with support of course. She's still nursing, but also walloping cereal, and coos and smiles and chuckles. We have all grown used to her unusual appearance with the enlarged right eye part and brown-patchy right side of her face, and the glaucoma treatment is currently merely a matter of eye drops morning and bedtime.
Deep sigh. Not one of resignation, but contentment. Life is so short and full of sorrow, but even fuller of joy and peace. As the Hokkien saying goes, "Want to cry, want to laugh, the sow accidentally pees."
Because I'm officially supposed to be studying, there's no pressure to "spend time with the kids!!" like when I'm on annual leave. I drift in and out of my room as I please, feeding Rachel when it's time, picking up the girls from their school bus drop-off if I feel like it (which I do), and generally having absolutely no "mommy" stress. Study for exam? Oh, ya, that. Sure, I study, and I get butterflies before the papers, but that's like a grain of sand compared to the hopper-load when it comes to general parenting, and the ten tons that fell on us when Rachel was diagnosed.
For now, very thankfully, our curly-headed little 5+month-old is developing like any other (normal) baby. She's a pro at rolling over and over (to the left, to the left), brings everything to mouth including her toes, loves standing and jumping on her sturdy little café au lait spotted legs, with support of course. She's still nursing, but also walloping cereal, and coos and smiles and chuckles. We have all grown used to her unusual appearance with the enlarged right eye part and brown-patchy right side of her face, and the glaucoma treatment is currently merely a matter of eye drops morning and bedtime.
Deep sigh. Not one of resignation, but contentment. Life is so short and full of sorrow, but even fuller of joy and peace. As the Hokkien saying goes, "Want to cry, want to laugh, the sow accidentally pees."
Friday, 11 September 2009
Not-nice Ribena
Overheard, Sarah telling her grandmother:
"Mah-mah, do you know how to make not-nice Ribena?
First, you pour some Ribena.
Then, you add water until it's just nice.
Then, you keep adding more and more water."
"Mah-mah, do you know how to make not-nice Ribena?
First, you pour some Ribena.
Then, you add water until it's just nice.
Then, you keep adding more and more water."
Dogs and Frogs
The kids have a penchant for asking for the same song over and over again in the car.
Sophie was doing this one day when her current favourite ended and she immediately asked, "Daddy, please may I have 'Hot Jumping Sausage'?"
After our laughter had died down, Sean told Sophie the proper name of the song. Trying again, she said, "Daddy, please may I have 'King of Rocks'?"
More peals of laughter from the two older ones. I took matters into my own hands, slowly telling her each word of the title.
Sophie said, very carefully, "Daddy, please may I have 'King, and, Rock, of, Roll'?"
And they all join in loudly at the chorus, Sarah especially liking to sing, "Al, ber, TURKEY!"
No prizes for guessing the correct song title and first line of the chorus!
Sophie was doing this one day when her current favourite ended and she immediately asked, "Daddy, please may I have 'Hot Jumping Sausage'?"
After our laughter had died down, Sean told Sophie the proper name of the song. Trying again, she said, "Daddy, please may I have 'King of Rocks'?"
More peals of laughter from the two older ones. I took matters into my own hands, slowly telling her each word of the title.
Sophie said, very carefully, "Daddy, please may I have 'King, and, Rock, of, Roll'?"
And they all join in loudly at the chorus, Sarah especially liking to sing, "Al, ber, TURKEY!"
No prizes for guessing the correct song title and first line of the chorus!
Friday, 4 September 2009
Sorry?
"Mummy, Sophie beat me! She beat my back!"
"Sophie, did you beat jie jie? You don't beat jie jie! Say 'sorry'!"
Sophie's reply: "I said 'sorry' when I was beating her!"
"Sophie, did you beat jie jie? You don't beat jie jie! Say 'sorry'!"
Sophie's reply: "I said 'sorry' when I was beating her!"
Tuesday, 1 September 2009
Moo...
The cow is resurrected. This time with the all-powerful Avent double electric pump, thanks to SIL.
The usual stressors arise: How's today's yield? How much time do I have before needing to feed/express? Should baby get formula supplements? IS SHE GETTING ENOUGH TO EAT????
Answer to the last question is of course a big resounding "NO!" according to both grandmothers. "Not growing!" "Not enough!" "Must give her more!"
Luckily, doctor is satisfied. And so the can of formula remains on standby, unopened. (Although I know my mom is just dying to take a knife to the foil seal and shake up 8 oz bottles à la Tom Cruise in ''Cocktail''.)
The trouble with supplementing is that it's not guaranteed entirely harmless. OK, harmless to baby, but potentially harmful to mom's supply. Baby is given formula, baby feeds less from mom, mom's supply drops, baby needs more formula, baby feeds even less from mom, mom's supply drops further... From past experience, a week of this can wipe supply out entirely.
Considering that Rachel has three older sublings bringing home germs that they lovingly rub into her hair and hands on a daily basis while cooing "Rachel! Rachel!" in funny high-pitched voices, germs as well as crumbs and other manner of sticky comestibles, thank you Sophie, Rachel seriously needs all the immunity she can get. As well as a thorough shampooing and washing up in her inflatable bath tub at bedtime every night, of course.
The usual stressors arise: How's today's yield? How much time do I have before needing to feed/express? Should baby get formula supplements? IS SHE GETTING ENOUGH TO EAT????
Answer to the last question is of course a big resounding "NO!" according to both grandmothers. "Not growing!" "Not enough!" "Must give her more!"
Luckily, doctor is satisfied. And so the can of formula remains on standby, unopened. (Although I know my mom is just dying to take a knife to the foil seal and shake up 8 oz bottles à la Tom Cruise in ''Cocktail''.)
The trouble with supplementing is that it's not guaranteed entirely harmless. OK, harmless to baby, but potentially harmful to mom's supply. Baby is given formula, baby feeds less from mom, mom's supply drops, baby needs more formula, baby feeds even less from mom, mom's supply drops further... From past experience, a week of this can wipe supply out entirely.
Considering that Rachel has three older sublings bringing home germs that they lovingly rub into her hair and hands on a daily basis while cooing "Rachel! Rachel!" in funny high-pitched voices, germs as well as crumbs and other manner of sticky comestibles, thank you Sophie, Rachel seriously needs all the immunity she can get. As well as a thorough shampooing and washing up in her inflatable bath tub at bedtime every night, of course.
Thursday, 27 August 2009
The Hand We've Been Dealt
I have been back at work for three days now. Rachel is 3 months and 1 week old. Consuelo is managing fine at home, so everyone's relieved.
On the last day of maternity leave (24 Aug), Rachel had her second NF1 doctor's visit at NUH. The ultrasound scan showed no spine or kidney abnormalities. Her weight gain and overall development also look all right after all. But the recently discovered lump on her left hip may need surgery under GA to be removed - BCG adenitis, a swelling of the lymph nodes as a result of immunization. She'll have to be seen again next Monday. We also picked up the copy of her MRI scan images.
Last Friday (21 Aug), her eye pressure was an acceptable 16, so her eye doctor at SNEC is pleased with the way the implant is working. But she advised us to obtain a copy of the MRI scan images from NUH.
Five weeks ago (17 July), Rachel had her third eye operation under GA to put in the Ahmed glaucoma implant . Everything went smoothly and she came out of the anaesthesia well so she could go home that evening. That was a Friday, after spending Thursday night at home on home-leave from the hospital.
On the Wednesday (15 July) before the surgery, she had her MRI scan under sedation. Although we didn't intend to stay overnight after the scan, she didn't come out of sedation well - got agitated and had to be given the antidote and then monitored for some time after that, so we spent Wednesday night in hospital. Since we were coming back on Friday for the operation the hospital didn't discharge her but they let her go on home-leave for Thursday night. The MRI scan showed a tumour (benign growth) in her head and around the right eye.
On the Monday (13 July) before the MRI scan, Rachel had her first NF1 doctor's visit at NUH. The doctor examined her over all and we spoke at some length about the likely NF1 or neurofibromatosis type 1 diagnosis. Doctor also ordered the MRI scan since the area around her right eye was (and still is) slightly swollen and the scan results would be able to better confirm the diagnosis.
Two weeks before her first NUH visit, we took Rachel to the Singapore National Eye Centre (SNEC) for a second opinion (30 June) where her second eye doctor advised putting in the Ahmed implant to which we agreed. Her first eye doctor was also in favour of this since her second eye operation under GA, a repeat trabeculectomy (12 June), once again proved unsuccessful. Her first eye doctor suspected that her swollen eye area could be a plexiform neurofibroma, considering her multiple café au lait spots.
Rachel had her first eye operation under GA on 25 May when she was exactly one week old. However, the trabeculectomy and trabeculotomy were not successful as her eye pressure crept up again although it was fine shortly after the operation.
When Rachel was handed to me upon delivery, I immediately noticed that her right eye was significantly larger than her left eye. The paediatrician called in an eye specialist who examined her and diagnosed congenital glaucoma. It all started from here and hasn't stopped since. Thankfully the intensity of visits (like see eye doctor 2-3 times a week for the first month of her life) has dropped and we're now generally at the home monitoring phase which will go on for the rest of her life. We just stand ready to deal with anything that crops up, if at all. Hopefully not.
-----------
1 Sep 2009 ETA: Doc found that the BCG lump thing has diminished slightly so she's happy to wait for it to go off on its own. So are we! Just have to check that it doesn't get bigger or boggy. Phew.
On the last day of maternity leave (24 Aug), Rachel had her second NF1 doctor's visit at NUH. The ultrasound scan showed no spine or kidney abnormalities. Her weight gain and overall development also look all right after all. But the recently discovered lump on her left hip may need surgery under GA to be removed - BCG adenitis, a swelling of the lymph nodes as a result of immunization. She'll have to be seen again next Monday. We also picked up the copy of her MRI scan images.
Last Friday (21 Aug), her eye pressure was an acceptable 16, so her eye doctor at SNEC is pleased with the way the implant is working. But she advised us to obtain a copy of the MRI scan images from NUH.
Five weeks ago (17 July), Rachel had her third eye operation under GA to put in the Ahmed glaucoma implant . Everything went smoothly and she came out of the anaesthesia well so she could go home that evening. That was a Friday, after spending Thursday night at home on home-leave from the hospital.
On the Wednesday (15 July) before the surgery, she had her MRI scan under sedation. Although we didn't intend to stay overnight after the scan, she didn't come out of sedation well - got agitated and had to be given the antidote and then monitored for some time after that, so we spent Wednesday night in hospital. Since we were coming back on Friday for the operation the hospital didn't discharge her but they let her go on home-leave for Thursday night. The MRI scan showed a tumour (benign growth) in her head and around the right eye.
On the Monday (13 July) before the MRI scan, Rachel had her first NF1 doctor's visit at NUH. The doctor examined her over all and we spoke at some length about the likely NF1 or neurofibromatosis type 1 diagnosis. Doctor also ordered the MRI scan since the area around her right eye was (and still is) slightly swollen and the scan results would be able to better confirm the diagnosis.
Two weeks before her first NUH visit, we took Rachel to the Singapore National Eye Centre (SNEC) for a second opinion (30 June) where her second eye doctor advised putting in the Ahmed implant to which we agreed. Her first eye doctor was also in favour of this since her second eye operation under GA, a repeat trabeculectomy (12 June), once again proved unsuccessful. Her first eye doctor suspected that her swollen eye area could be a plexiform neurofibroma, considering her multiple café au lait spots.
Rachel had her first eye operation under GA on 25 May when she was exactly one week old. However, the trabeculectomy and trabeculotomy were not successful as her eye pressure crept up again although it was fine shortly after the operation.
When Rachel was handed to me upon delivery, I immediately noticed that her right eye was significantly larger than her left eye. The paediatrician called in an eye specialist who examined her and diagnosed congenital glaucoma. It all started from here and hasn't stopped since. Thankfully the intensity of visits (like see eye doctor 2-3 times a week for the first month of her life) has dropped and we're now generally at the home monitoring phase which will go on for the rest of her life. We just stand ready to deal with anything that crops up, if at all. Hopefully not.
-----------
1 Sep 2009 ETA: Doc found that the BCG lump thing has diminished slightly so she's happy to wait for it to go off on its own. So are we! Just have to check that it doesn't get bigger or boggy. Phew.
Wednesday, 26 August 2009
Beef Horfun - nice or not?
For a change, we ta pao'd dinner from the tze char stall downstairs. Sarah had beef horfun.
After dinner, I asked her, "Did you like the horfun today, Sarah?"
"Yes," she replied.
"How did you find the beef?" I asked.
She took a while to consider this. Finally, she said, "It was on top."
After dinner, I asked her, "Did you like the horfun today, Sarah?"
"Yes," she replied.
"How did you find the beef?" I asked.
She took a while to consider this. Finally, she said, "It was on top."
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